Monday, September 30, 2013

Rite of Passage (From May, but took some time on it)

Andrew gets confirmed this weekend.  One requirement that the pastor asked the kids to do was to write a letter to someone (living or dead) who played a role on their faith journey.  Andrew chose to write one to me and his best friend Aaron.

The letter to me was simple and easy for him to write (and very sweet, by the way). His letter to Aaron was hard for him to compose. He had it all in his head, but it was tied with some heavy emotions.  It turns out, last summer when he and Aaron went to camp together they had many heart-to-hearts (as many as guys can have) and some about religion and spirituality.  It wasn't heavy stuff, just that God has a plan for everything and everyone.  Andrew told me that there was a young man there who had a physical handicap and Andrew was feeling sorry for this young man, but Aaron pointed out that the young man is perfect just as he is, because that is how God made him.

This struck an internal chord with Andrew, one I don't think (due to our conversation last week) he articulated with his friend. You see, Andrew is aware of his autism. He knows that he's "different" and he, as many young kids, is struggling with self image.  That wonderful age when you wonder why you are the way you are...you know what I mean.  I digress, after this conversation at camp Andrew still wasn't convinced that he, himself, isn't a "mistake".  That he being autistic was a mistake and that he is "lesser than"....

Now I could go into some rant about social norms and how silly they are, but to see your child, one who struggles with expressing himself in general, completely break-down and tell me that he feels like a mistake is HEART WRENCHING.  He felt that the had no purpose, that being autistic is meaningless, void of worth. How incredibly sad.  I stopped him while he was talking, grabbed him by the hand and found Mies, and my parents who were visiting at the time, and had Andrew explain to all of them (people who love him and whom he loves) that he felt his being the way he was a mistake.  Needless to say, we all (with tears and hugs and words of true kindness) reassured Andrew that nothing about him is a mistake, that he is perfect, just as he is and that he is loved more than he can imagine.

Now that is almost six months later (five, to be honest) I should revisit this topic with him. I do tell him that I love him (daily and then some) and I tell him how proud I am of him (again, daily and then some), but I think to just remind him that he has a purpose and that he'll find his own way in this crazy world is a good conversation to have (daily and then some).

Yes, it has been awhile...

Sorry blog, you've been neglected.

Now that we approaching the 10th month of 2013, let me tell you that our life has been something of a roller-coaster ride.
I must admit that being on my own for about 8 months (Jan. - August) was not an enjoyable experience.  I missed my family on the daily (or by the second, honestly).  It did allow me to focus on my new position and get a jump start on the goings-on of Grand Rapids.  I was able to enroll the boys in decent schools, find a home (with the needed help of Mies and our realtor--who was the best!!), find extracurricular activities for the boys and settle in to our new city.
All while somewhat retaining my sanity (the verdict is still out on that one...)

More to come...stay tuned...

Saturday, January 12, 2013

2013....this is my thought process..hang on to your hat...

Happy New Year! Ok, so for those who aren't sure what is going on with the Martin clan this one is for you.

Several years ago, Mies and I realize that, to stay current in our careers, major changes would have to occur. There wasn't any place for professional growth in our location. Back in 2010 I enrolled in Michigan Library Association's Leadership Academy (LA) to begin my journey. While the experience wasn't earth shattering, much of it being common sense when it comes to being a "leader", it did allow me to start making contacts AND become more active in libraries on the state level. (Summary:I began networking, which is hard to do from the UP). While experiencing LA and reaching out via the state organizations I began to question where I wished to be (career wise) in the next 5 - 10 years. Now, for those who know me well, this is an impossible task. I'm not a great long term goal setter, this doesn't mean I do not set goals and am not tenacious/relentless in achieving my goals, it just means long term goals aren't my strength. While making contacts I began meeting some wonderful people who were from GVSU. I found that they were doing things, and had resources to do these things, that I had on my 5 - 10 plan. Now, I am wise enough to know that there is no utopian organization out there that will match all your ideals, but from the outside GVSU seemed to be a place I could aspire to my career goals. (I also must note that for years Mies and I said that if we ever moved back downstate it would most likely be on the west side of the LP. No offense to Lansing or the D, but that wasn't where our hearts were longing to return to.) Fast forward to last summer, Mies was tipped off about a mid-manager position with GVSU libraries that would be opening up soon. He passed this information on to me. Now, as soon as I heard this tip, my first reaction was, "I'm not going to apply. I can make my current situation work. This is not the right time to move." etc, etc. Then some things happened, career wise, which I won't mention here, but am willing to discuss privately. This inspired me, with much discussion with Mies and admittedly some thoughtful process to FINALLY apply for the position. I must admit that when I sent my application off (via interwebs) my immediate response was, " Oh Sh*t, what did I just do!!" Many times I thought to take my name out of the list, but Mies encouraged me to see what happens. Well, here is what happened....I got the job. GVSU made us an offer we couldn't refuse. But my taking the job caused some sacrifices, which we are facing as a family at this very moment.

The reality is that I would (and did) have to relocate on my own--temporarily. This may be as long as 5 more months of being down here, while my family is still in the UP. As you can imagine, this is a very hard situation for all of us, but most especially for Mies. He has the job of "holding down the fort", preparing for his comprehensive exams and other family matters. Not to mention, getting the fort ready to sell this by this March or April. This isn't to say that I'm living the life of Riley, while Mies slaves away at home. No, my task is to master my new position with different yet same responsibilities; find a school district that matches the expectations of our children and meets their needs simultaneously. Begin the new house hunt, plan for visits to UP in order to start packing our stuff and/or selling/donating things. So, I'm running logistics, while he's holding down the fort. Which should all come to an end some time this summer, when we are reunited (and it will feel so good) AND relocated.

The worst part in all of this is how much I miss my family. I just want to give my boys hugs/kisses, but instead look at and talk with them via a computer screen.

So, that is what is going on in a nutshell. Please don't comment on typos and run-ons, etc. This is more of a very poor attempt of stream of consciousness..and NO, you cannot comment on that either.

Any questions???

Wednesday, June 13, 2012

I am happy to report that both boys survived another year of school. They are both flourishing and have been enjoying their first week of summer vacation. BUT...I do have school work like things for them to work on over the next few months. So, I hope they enjoy their time away from learning... ;) Next week Aidan is going to see what the Killer Whales swim team is all about. If he doesn't wish to pursue any more organized swim time this summer then he will be going to Houghton's summer GE programs Later this summer he will be going to Copper Country Community Art Center's Art Camp. Andrew will be going to Blue Lake Fine Arts camp again this summer. This year his BFF will be going the same week, which will make the 11 days more tolerable. We have one wedding to attend this summer, plus I'll be going to some library related meetings here and there. Overall, not a busy summer planned for 2012. Have a great summer everyone.

Tuesday, December 6, 2011

The Thinking Person's Guide to Autism: An Autistic's Advice: Ten Tips for Teachers

The Thinking Person's Guide to Autism: An Autistic's Advice: Ten Tips for Teachers: Lydia Wayman autisticspeaks.wordpress.com There is so much misinformation and so many misperceptions out there about people with disabili...

Tuesday, July 19, 2011

Long overdue

Geez, I realized that I never updated about our second round to Marshfield Clinic! Oops, things have been busy, sorry.
All four of us went to Marshfield's this time. Thank goodness the motel had an indoor pool. And we revisited a Mexican restaurant that we enjoyed on our first visit.
When we went to the clinic it was an all day/one day visit this time. We arrived at 7:30 AM for a 7:45 AM start. Aidan, Mies and I met with another neuro-psychologist, an occupational therapist and a speech therapist. (Andrew was catered to/entertained by the receptionist staff). It was determined, as we suspected, that Aidan is NOT on the autism spectrum. However, they agreed that he is in fact dyslexic and most likely his inattention is stemming from ADHD along with sensory processing disorder.
What does that mean??? Well, Aidan will need OT for sure, at this time, we are waiting to see if he can receive some services through the school. He might need to be medicated for ADHD. The medication process involves a 4 week, double-blind study to see what (if any) level of medication will be needed. We, on the advice of the neuro-psychologist, are waiting to do the medication study sometime in the fall. Since we went Marshfield in May, and met with the school a week later, it just made sense to wait for the next school year.
Needless to say, we're waiting for fall...HOWEVER, that doesn't mean we're not working with Aidan at home. His second grade teacher gave us some reading books that are an easier level (late 1st/early 2nd), but he is getting through the pile, slowly, but surely. Plus, she set home a large stack of math sheets that he finished early on. He loves math. Although, he can reverse numbers in his answers, which is a bit frustrating for him. He needs to learn to double check his work, which isn't a bad habit to get into.
I have been reading books upon books about sensory processing disorder. I have yet to try any activities at home...I'm not 100% confident whether I could do them "right" and/or get the best result. I hope to get some pointers from the OT this fall.
So there...that is what happened in round 2 w/ Marshfield Clinic. Which, by the way, is a great clinic! The staff is very helpful and friendly, as are the professionals. We had a great experience there, all in all.

Saturday, May 28, 2011

Thanks Glee.

Thanks to Glee, I've been thinking about the song, "For Good", which has sparked a wave of grief for everyone I've lost in my life. So, I'm dedicating this song to them.



Tuesday, April 26, 2011

Journey to Marshfield, Wisconsin

On March 31 and April 1, Aidan had his first visit (of 2) to Marshfield Clinic. During this trip we discovered that Aidan does, in fact, have developmental dyslexia. This came as no real surprise for Mies and I, since he has been struggling with reading, not hearing sounds, reversing letters, etc. I think I may have mentioned this suspicion in an earlier blog. The good news that emerged from this trip is that the school jumped on this diagnosis and Aidan has been receiving remedial assistance, and has made some HUGE improvements in less than a month's time. He's no where near where his classmates are in reading ability, but he's been working hard with both Title I and pull out services. Plus, when he goes to the after school program two days/week, they've been working with him on his spelling words, which has brought up his spelling grade!

The second phase of the Marshfield experience is coming soon. On the previous trip, the 2 professionals we saw; one pediatrician and one neuro-psychologist, both felt Aidan was on the cusp of either Attention Deficit Hyperactivity Disorder (ADHD) or Pervasive Developmental Disorder (PDD) (the later was formally PDD-NOS, but I think the DSM-V or DSM-5 is dropping the "Not Otherwise Specified" portion). On this trip (round 2) he will meet with one more psychologist, also with a speech therapist and an occupational therapist. It will be an all day thing, a long day for all of us, but especially Aidan.

This is where is gets a bit nerve-racking. I've always felt Aidan has sensory processing issues, he reacts negatively to the Me-Protocol and to gentle massages from a massage therapist. His legs hurt if he stands or sits in one place for longer than 2 minutes, so he needs to "stretch"(his words). He needs to sleep with several blankets on him, all year round, or in the summer, he will "cocoon" himself in his sheet. He's very clumsy, always falling, stubbing toes, tripping, etc. He always falls out of his chair or if he does sit successfully, it's on his knees while leaning over a table to write/draw. Noises and motion are highly distracting (and not in an inattentive way). Now try and take all those issues and sit and learn in today's classroom! I dare you to try and learn with all this going on in YOUR body. I don't feel he is either PDD nor has ADHD, but has Sensory Processing Disorder (SPD). And yes, I'm a little angry (like that wasn't obvious). Not with anyone/anything in particular, but it is distressing when you have one child that has external issues that affect them, let alone two.

The sad thing about SPD is that it isn't recognized as a learning disability and hard to get services just for SPD. Most children who have SPD are misdiagnosed as being either autistic or having ADHD, since SPD is prevalent with those diagnosis. A common phrase I hear is that everyone on the autism spectrum (like Andrew) has SPD, but not everyone with SPD has autism. Similar things said about ADHD.

So, now, we wait, wait for the visit to see where they place Aidan. I'm positive the OT will see his SPD and the speech therapist will see mild speech apraxia. [Side note with my speech concerns: when the ENT removed Aidan's tonsil and adenoids (when Aidan was 3 yo) the doc. told me that Aidan's soft palate was having a hard time sealing against the back of the throat (?), but he told me it would correct itself--what if it is affecting his speech ? I don't know]. One might think that with all the "experience" we have in the world of Autism Spectrum Disorder, that this would be a "piece of cake" for Mies and I. I can honestly say, that this time is different, literally and emotionally.

It is hard not to take these diagnoses (for both boys) personally. What did I do wrong? Did I miss something allow the way? Should I have noticed things or spoken up more when I did? I did put forth so much energy when Andrew was diagnosed as having HFA that I think I burnt myself out. So, when I started noticing things were "off" with Aidan, I just ignored it, thinking that he was imitating Andrew's behaviors and that when he went to school, then he'd be fine, "normal". The dyslexia part was noticeable in kindergarten and am glad that it was finally diagnosed for Aidan, but the other quirky and sensory processing stuff, I thought was imitation. Honestly. I know it sounds stupid now, but given the circumstances, like where we live there aren't many young children in our neighborhood and with Andrew being HFA, we never joined things or went to many places where there would be a lot of children. Because if we did then Andrew would either "retreat" within himself or when he was younger have a tantrum, so going places was hard. And then it's explaining why my son is like this -- like it is my fault, or is contagious or something. I'm sorry, I didn't want to be the freak show!! I know that sounds harsh, but think about it...people pointing, whispering, or acting like I have the plague, because my autistic child is having sensory processing issues. It's exhausting, having to explain...so we went to fewer and fewer places/events. And when we did go places, and Andrew did "retreat", he was not only being watched by other families, but by Aidan. Aidan was also watching at home; he and Andrew are ALWAYS together. That is why I honestly felt that these "quirks" in Aidan were learned. [Another side note: With Andrew, I stopped explaining, because I started accepting Andrew as Andrew, which was VERY empowering for both me and for him.]

I just hope they get it right in Marshfield and that Aidan gets help with his sensory processing, just like he has for his dyslexia.

...TO BE CONTINUED...

Tuesday, February 22, 2011

All things David Foley

I was a HUGE fan of the tv show News Radio, plus a HUGE fan of KITH.
I admit I follow the KITH fan page on Facebook, which is where I came upon this podcast/interview of "The Joe Rogan Experience" (who was also on NR) of David Foley.
I was shocked about child support laws in Canada! Poor Dave.
However, divorces aside, Mr. Foley is very talented and I'm positive that he will land on his feet. And this is a fun interview, so watch it.

Saturday, February 19, 2011

13th Anniversary (2/21/11)

My favorite scene from Bridget Jones' Diary. It spoke to me, because Mies is the serious, intellectual guy and I'm the quirky, airhead, but he loves me just the way I am.

Monday, January 31, 2011

Aidan needs glasses

Yes, he does he has Accomadative Esotropia, which means his eyes cross when he tries to focus on anything, like reading, writing, coloring. This is a great relief, believe it or not. He has been struggling with reading and is a grade level behind. We noticed reading problems in first grade, but chalked in up to him being more of a sight reader, like the rest of us in our family. "Hooked on Phonics" does not compute, in the Martin household.
So, why did we take so long to correct the situation, you ask? Well, we did take him to an eye doctor last year, who told us that yes his eye turns in, have him "blink it off". Huh? Well, thanks to our insurance, we were stuck with that diagnoses for a year, cos only one exam/year is covered. Plus, we were still not sure if it wasn't just a sight word thing, or maybe he could have dyslexia, it runs the family. Which reminds of me...

Eddie Izzard Dsylexia--"Stripped"


Not to say that Aidan doesn't have dyslexia in addition to esotropia, he may, who knows. At least we are heading in the right direction.
We have a meeting with his teacher, the principal, the counselor, the Title I teacher and possibly the resource room teacher, tomorrow at 1:30pm. We shall see how that goes. It's mostly a different crew than we had with Andrew, since most of those idiots have retired. Thank you, A-sus, B-sus, C-sus, etc. (Sorry another EI bit)
Eddie Izzard & God--"Stripped"


Holy Cow, I'm exhausted. Time for bed! More later.

Saturday, January 22, 2011

No Title

Four Weddings and a Funeral





Rent


Steel Magnolias


My Girl


Beaches

Wednesday, January 19, 2011

Melissa Ann Maple, b 11/23/70, d. 1/16/11


IN MEMORY OF MELISSA ANN MAPLE
Melissa Ann Maple, 40, of Blanchester, Ohio died 7:45 PM, Sunday, January 16, 2011 at Hospice of Dayton after a long battle with pancreatic cancer. Her husband, David L. Maple, whom she married October 14, 2000, survives. She was born November 23, 1970 in Detroit, Michigan. Mrs. Maple was the Associate Director of Quality Assurance at Alkermes. She received her bachelors of science in biology from the University of Detroit.
In addition to her husband, Mrs. Maple is survived by a son, Daelin Layne Maple; her parents, Elizabeth J. and Herman "Buddy" Buddenborg; her half sister, Eva (Curt) Cuthhertson; her father-in-law, David (Susan) Maple; her mother-in-law, Jane (Larry) Roberts; a sister-in-law, Melissa (Marty) Fellure; and her nieces and nephews, Ashley, Amelia, Austin, Aiden, Kennedy, and Noah. She was preceded in death by her grandmother, Bella Greenwald, and her grandfather, Morris Baker.
Funeral services will be 2:00 PM, Saturday, January 22, 2011 at the Reynolds-Smith Funeral Home, 327 N. South Street, Wilmington, Ohio with Dan Mayo officiating. Burial will be in Springfield Friends Cemetery. Friends may call from 4:00 PM - 8:00 PM, Friday, January 21, 2011 at the Reynolds-Smith Funeral Home.

Monday, January 3, 2011

Resolution

Happy 2011! My resolution is to spend more time reading. Why? Well my reason is twofold. First, I'm doing something I think is fun. We inherited a set of the Harvard Classics--Five-foot shelf---and I'm embarking on the 15 minute a day reading list. I started two days ago, and am enjoying the selections so far. I'm not going to blog about this in too much detail, as it has been done before. However, it does get me "warmed up" to do some reading that I've been putting off. Reading various materials related to the profession. And so, when I've completed my 15 minutes of the Harvard Classic o' the day, I then read Charles Osburn's Social Transcript: Uncovering Library Philosophy. I've just begun, and can tell it's going to be a worthwhile read. I do remember being taken aback in library school that there was no central philosophy to librarianship. This book has already sparked some interest for me and will be ILL-ing articles and such on the topic. More blogs to follow. Here is one review that I've found.

REVIEW:
"Retired from active academic work, Osburn introduces a philosophy for the library, using the processes of cultural evolution as a context for understanding why—rather than how—the social institution functions. The concept of the library and the practice within it are confused in the minds both of the public and scholars, he argues, so that misleading conceptions and fundamental misunderstandings about what the library is and why it exists arise easily and often. His topics include strategic considerations, a cultural technology, and stewardship of the social transcript."
–
Reference & Research Book News

Now for reason #2:
My husband will be taking his comprehensive exams toward his PhD starting this April. His 4 questions were approved late last summer and has been working hard with his reading lists. However, he has complained that there are too many distractions around the house and also, that he's feeling like he is not alloted enough time to focus. I can understand, this has been his struggle since the beginning, seven years ago, working full time, raising a family and working toward his PhD. Lately, he's been complaining that I'm watching too much tv! ME? The 2 shows I watch irregularly. That is a distraction?!? Ok, enough scoffing. If that is his area of concern, and I'm not a vidiot and do enjoy reading, I've decided that spending more time reading (and possibly blogging) would be less of a distraction and possibly an encouragement for my husband to complete his studies.

Not too shabby of a resolution and I may learn something along the way. If I do, I'll keep you posted.

Happy New Year!

Thursday, December 2, 2010

Monday, November 22, 2010

Thursday, October 28, 2010

Ode to Anonymous (DiFranco) Cat

14 years ago, a friend of ours found a cat (not sure how old) at the local animal shelter and she was immediately smitten. She loved her color, her spunk, her eyes, her size (she was small) AND her name. When our friend went to the animal shelter to adopt a new cat, she saw this charcoal grey w/ white cat with piercing green eyes and read the name, Anonymous Cat. Although someone wrote in magic marker (in parenthesis) after the word anonymous. The word they wrote was (DiFranco). So, not only was our friend smitten by this beautiful, spunky, fun cat, but she was a huge fan of Ani DiFranco. Ani's song Shameless was a big hit at that time, too.




So, our friend adopted Anonymous (DiFranco) Cat and renamed her Ani-Cat. I could see what my friend saw in her, she was fiesty. She was a birder, and could jump amazing heights. She was also very tough for a smaller cat, our friend's roommate had other cats--male cats--and Ani-Cat became the Queen of the Roost in no time. On the other hand, Ani-Cat was very affectionate; she loved to have her neck scratched and would sometimes push her head under your chin mid-scratch. She had a loud purr, which matched her personality.
A few months later, our friend was accepted to go for grad. school in the UK and thought it best not to take Ani-Cat with her. So, our friend asked my, then boyfriend, now husband, if he would like to have her. We were kind of living together and so, he asked my opinion, and of course I agreed. She was a lovely cat, after all. That was 13 years ago, last August.
She was a great pet, and great comforter, a great companion and did I mention she was tough? She was mostly an indoor cat, but she had never been de-clawed. Since we weren't sure how old she was, we didn't want to risk an unnecessary surgery, so we let her keep her claws. Not too much after we bought our first home in a suburb of Detroit, she got loose. We had a crazy cat-lady on our street and she immediately went over there, although I didn't know that at the time and was searching the neighborhood. Fortunately, my Mom was visiting and we both found her in an old, beaten up car, which was in the cat-lady's driveway. Ani-Cat was hurt, but not too badly, she seemed more agitated with the other cats in that car. Her hair was up and she was growling. I called the vet and took her in. He did notice some bite wounds on her hip, but said to me (and yes, I've never forgotten), "Man, her nails are shredded! She put up one heck of a fight. I'd hate to see what the other cat(s) look like." And I thought to myself--with a sense of motherly pride, "Damn right! She's one tough bitch; you don't mess with her!"
Soon we were off the the UP and several months of life in Married Housing *shudder* where no pets were allowed. We had to fudge that rule, because there was no way we were placing Ani-Cat in a "kennel"; plus, we knew it was temporary until we found a house. Ani, which is what we shorted her name to, was not too happy being cooped up and while we were at work, during the day, a neighbor told me that he could hear her meowing. Needless to say, she wasn't happy in that apartment and neither were we. About 4 months later, we bought a house. It is located next to a heavily wooded area, a "suburb" of Houghton, if you will. Ani was very happy. She did get out on occasion, but stayed in doors mainly. Since we lived in a wooded area, we would, from time to time, get a mouse in our house. Thankfully, Ani was a skilled mouser, and a skilled chipmunker, and a skilled bat-ter, too. (Plus, a few birds went missing from the bird feeder area). She was VERY patient with the kids, as they grew, but not so patient when we adopted Sasha, the husky-mix. Now, husky's have a bad reputation when it comes to smaller animals...some eat smaller animals. Ani wasn't having it and from day one put that dog in her place. And over the years, whenever Ani was pissed off about something, anything (a baby pulling her tail, getting her nails trimmed, etc) she took it out on the dog. She would sneak up on the dog and come out swingin' and hissin', poor dog didn't stand a chance.
Well, Anonymous (DiFranco) Cat, we tried to give you a good home and good life, and I think we succeeded. You will be missed! RIP, girl!